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Is there a support forum for interstitial cystitis?

Is there a support forum for interstitial cystitis?

Welcome to r/InterstitialCystitis, the support forum for IC/PBS and other bladder problems! Join us in the r/InterstitialCystitis Discord channel to live chat any time! People with other bladder/pelvic problems (Overactive Bladder, prostatitis, chronic urinary tract infections, pelvic floor dysfunction, ect.)

How does interstitial cystitis affect quality of life?

It can severely affect quality of life. Studies show half of patients can’t work full-time and 70 per cent have disturbed sleep. Interstitial cystitis may develop gradually or appear quite suddenly — often after a urinary tract infection or operation — and last for weeks, months or even years, as in your case.

Is there a Discord channel for interstitial cystitis?

Join us in the r/InterstitialCystitis Discord channel to live chat any time! People with other bladder/pelvic problems (Overactive Bladder, prostatitis, chronic urinary tract infections, pelvic floor dysfunction, ect.) Anything related to IC/PBS, bladder problems or life with chronic illness is welcome!

How many women in US have interstitial cystitis?

The Centers for Disease Control and Prevention (CDC) believes those numbers to be even higher, with 12% of all American women showing symptoms and early signs of IC (that is 38 million people!). However, only a small number of them even know they have it.

When do you get diagnosed with interstitial cystitis?

Most people with interstitial cystitis are diagnosed during their 30s or older. Having a chronic pain disorder. Interstitial cystitis may be associated with other chronic pain disorder, such as irritable bowel syndrome or fibromyalgia. Interstitial cystitis can result in a number of complications, including: Reduced bladder capacity.

What does it mean when you have chronic cystitis?

Chronic cystitis Chronic cystitis (also referred to as interstitial cystitis) originates in the bladder. It causes a painful pressure or burning in the pelvic region, and a frequent need to urinate. The condition affects women more often than men.

What foods should you avoid if you have interstitial cystitis?

In addition, many with IC have other health conditions (e.g., constipation or irritable bowel syndrome) requiring them to limit or avoid specific foods related to these health problems. Foods and beverages that affect symptoms are different for each person with IC. Studies have consistently found that diet triggers vary greatly among IC patients.

How is inter stitial cystitis related to irritamyalgia?

In fact, a key point about inter- stitial cystitis is that tests consistently fail to detect infection or any other identifiable cause. In that respect, the condition has much in common with fibromyalgia and irritable bowel syndrome.